Understanding the world of rare diseases

Rare disease image collage

Consider this: It takes an average of eight years for someone with a rare disease to get a diagnosis. Many adults have endured symptoms for decades before finding out what’s wrong with them. Even with a diagnosis, their challenges may not be over. The world of rare diseases is often complicated and misunderstood.

Conversations About Aging: Leona, 92

Leona with her cat

Conversations About Aging is a podcast about …. aging. I am traveling the state of Maine talking to people 60+ about their perspectives on growing older. Leona, who is 92, lives in the largest city — Portland. There’s plenty to do there but one major challenge makes it difficult for her to get around. It’s not her age.